Editor's Note: As part of a dialogue about autism and our community during Autism Awareness Month, we are sharing Educator Lisa Friedman's blog about autism advocacy, acceptance and recovery. It was originally featured on Think Inclusive. Please share your comments below.
In January, I wrote a blog about a poet and self-advocate named Scott Lentine, who has autism. I continue to be impressed by self-advocates who use the power of their words to inspire others to greater levels of understanding. As a blogger, I can relate. I write to inspire, motivate and support others on the journey toward inclusion.
In learning about him, however, I began to grapple with the question of whether there's a tension between the concepts of autism acceptance and autism recovery, and now I'd like to share that question with the New Normal community.
At the Passover Seder, we recall the Israelites’ redemption from Egyptian slavery. It is an appropriate time to examine the link between Egyptian slavery and beliefs that can keep us in bondage.
The “Egypt Within”
The Hebrew word for Egypt, “Mitzrayim,” closely resembles the Hebrew word “maytzarim,”—boundaries, constraints, narrow and confining spaces. None of us is physically enslaved, but some of us experience “the Egypt within,” believing that we are trapped by our disability, confined to “narrow spaces,” from which we cannot escape to live fulfilling lives.
Editor's Note: Shelley Cohen's blog published today is very timely, as the Justice Department announced a landmark agreement with the State of Rhode Island yesterday that will liberate people with disabilities from sheltered workshops. Read more about this agreement in The New York Times.
The Justice Department announced today that it has entered into the nation’s first statewide settlement agreement vindicating the civil rights of individuals with disabilities who are unnecessarily segregated in sheltered workshops and facility-based day programs.
For children who have sensory processing differences, Passover can be a very challenging holiday. Sensory integration refers to how our our minds and bodies continuously process, filter and respond to information from our surroundings in order to pay attention, behave in a flexible manner and interact with others.
The four questions may look slightly different under the circumstances ….
Why do I have to sit for such a long time? Why is everyone singing way too loud? Why do these foods smell so awful? Why can’t I just eat what I want?
Like all human beings my unique personal identity is composed of many facets. I am a woman. I am a mother. I am a daughter and a wife, a Democrat, a citizen of the United States, a writer and a former attorney. I am also an autistic Jew. I am proud to be all of the above. I like who I am. There are times, though, when much to my sadness, it is not easy to be both autistic and Jewish. While my religion places great value on empathy and inclusiveness, not all those who practice it do. While my people have risked their lives to stand in solidarity with others who have been disenfranchised, there have been times when we have neglected to stand in support of one another.
Editor's Note: These wonderful suggestions take the reader through steps of the Passover seder.
Passover is an ideal holiday to explore multi-sensory ideas for reaching every type of learner at your seder through activities that engage particpiants not only through visual and auditory information, but also through touch, taste, and smell. Whether your goal is to keep everyone’s attention, or help individuals understand the story, or encourage participation from every guest, below are ten of our favorite ways to keep the seder interesting, active and fun!
April begins Autism Awareness Month. Here at The New Normal, we promise to bring you a variety of voices speaking about the experience of living with autism, and how we as a Jewish community can best support people who have autism across the lifespan. That means creating inclusive early education centers, meaningful workplaces and housing communities and more. Our bloggers will be sharing perspectives about how our community can provide effective formal and informal education and also make our synagogues and other communal places more inclusive of people on the spectrum and their families.
The proverb “The perfect should not be the enemy of the good,” means that insisting on perfection often results in no improvement at all. In keeping with the wisdom of this sentiment, I think the time has come to begin the discussion of what does inclusion of people with disabilities really mean? And should we as a community allow for sub-optimal solutions? Recently I was faced with two separate situations that echoed these questions for me.
Visual artist Chany Wieder-Blank recently participated in the Asylum Arts International Jewish Artist Retreat, which was created as part of Schusterman Connection Points, an initiative launched by the Schusterman Philanthropic Network, a global enterprise that supports and creates innovative initiatives for the purpose of igniting the passion and unleashing the power in young people to create positive change in Jewish communities and beyond.
“The New Normal” Editor Gabrielle Kaplan-Mayer interviewed Wieder-Blank about her experience at Asylum, her art, activism, Jewish identity and experience as a person living with a disability.
The Center for Disease Control (CDC) has released new data stating that 1 in 68 children is diagnosed with autism spectrum disorder (ASD). This number is a 30% increase from data released in May 2012 that identified 1 in 88 children as having autism. It is 120% higher than the numbers reported in 2000 and 2002, which identified 1 in 150 children as having autism. In 1980, only 1 in 10,000 children was diagnosed with autism.