My eight-year-old daughter has a clear vision of her life as an adult: she’s going to be a singer-songwriter and live part of the year in Paris, where she will own a boutique selling the accessories that she designs. She said that I could have a job there, putting the merchandise carefully into soft paper bags lined with tissue, if I promise to be very careful.
She’s a highly creative, energetic kid with a natural sense of rhythm, pitch and fashion, and my husband and I encourage all of her dreams, knowing that if she hits a rough patch breaking into the music or fashion industry, we can encourage education or other career choices that allow her to use her gifts.
As for her mom, I just had my forty-third birthday and enjoyed a beautiful, laidback day with family and friends, a hike with our yellow lab on a new trail and dinner on the porch of a neighborhood BYOB restaurant. I am grateful for exactly where I am in my life, and do my best to stay present, but had a flash, just for a moment, that when (God willing) I turn fifty-three, my daughter will be eighteen and ready to go off to college, a gap year or a waitressing job and apartment with friends; our two-year-old lab will probably not be able to endure a two-hour hike on steep trails and my eleven-year-old son, who has autism and intellectual disabilities, will be twenty-one, at the end of his tenure in the school system, also ready to transition to what’s next for him.
As the end of the school year approaches us, here are some tips for parents of children with autism (or any child who needs support with transitions) when trying to support their son or daughter move from school to summer.
1. Preview - Talk to your kids beforehand about what changes they can expect. Show them pictures of new places and people, like camp counselors. Visit any new locations with your child ahead of time so nothing is a surprise. Skype with friends and family to see where you'll be staying when you go on summertime visits. Check out the websites of summer camp facilities, hotels, attractions or city going to visit. Tour summer day or sleep away camp grounds ahead of time. If that's not possible, you may want to contact places to see if they have any DVDs that depict their facilities.
Tuesday evening begins the holy days of Shavout, the moment of receiving Torah at Mount Sinai. Revelation at Sinai is the first, and largest, act of religious equality in history. Many other cultures and religions experience the divine in the same way they experience the world around them – as a hierarchy, a society divided by class or title. The Revelation at Mt. Sinai is open to all – regardless of status, gender, power, or lack of power. All the individuals at Sinai are equal.
We could celebrate Shavuot as we just celebrated Memorial Day: with ceremonies, a day off from work and a festive meal. Our tradition urges us to celebrate Shavuot in a more spiritual manner, by recreating the experience of standing at Mount Sinai to receive the Torah.
Editor's Note: Alexis Kasher, the current president of the Jewish Deaf Resource Center, recently shared her personal experiences and perspectives on inclusion for people who are deaf in the Jewish community at the Foundation for Jewish Camping conference. New Normal editor Gabrielle Kaplan-Mayer interviewed Kashar about the conference.
NN: What is your experience of inclusion for people who are deaf in the Jewish community?
AK: I spent many years practicing civil rights and special education law. My practice focused on the civil and education rights of people who are deaf and hard of hearing or with disabilities. Laws are in place to protect their rights; however, enforcement is still an issue. It has been many years since the Americans with Disabilities Act (ADA) and various federal special education laws was passed but we still have a ways to go before we are at 100 percent compliance. The truth is, once we are at 100 percent compliance, we will have achieved universal design that will benefit everyone. For instance, imagine how strollers would get around without curb cuts and how we could watch the Super Bowl in a noisy public place without closed captioning. However, for the most part religious organizations are exempt from compliance with the ADA.